Elizabeth is turning 38 this June. Born with Junctional EB, she is a single mother of two children (ages 6 and 4), neither of whom have EB. She describes still learning how to find acceptance in living with EB — fluctuating between gratitude for being alive and well, and grief over the ongoing physical and emotional pain. What EB has taught her is that kindness matters and that differences are what make us beautiful. "As much as we suffer, we are some of the most resilient people. We smile, laugh, dance, pursue endeavors, find love, make friends, go to college, and have successful careers. We can live a fulfilling life even if we have to modify things along the way."