EB Stories
Three generations of one family live with Epidermolysis Bullosa Simplex: Al, his son Rob, and grandson Walker. Their story is one of inherited strength and a connection to Hallie Grace that they believe was anything but coincidence.
Al, Rob, & Walker Cantrell
Annie & Brooke Kendricks
Annie grew up in the 1980s navigating EB Simplex through pure trial and error, with no roadmap to follow. Decades later, her son Brooks was born with the same condition, and together they've turned what they've learned into advocacy.
Ariana Covarrubias
Ariana is 25, a first-generation college graduate, and living with RDEB. She uses a wheelchair and a feeding tube, and her goal is to show people what truly matters in life.
Brooklyn arrived in June 2023 fighting for breath, and her JEB diagnosis brought a world of unknowns. With a trach, a g-tube, and a personality her family calls feisty and fearless, she keeps proving she's tougher than EB.
Brooklyn
Caroline Georgia Mitchell
Annie grew up in the 1980s navigating EB Simplex through pure trial and error, with no roadmap to follow. Decades later, her son Brooks was born with the same condition, and together they've turned what they've learned into advocacy.
Known as Goobie and Mr Amazing Fire Eddie, he built his whole life around a future in wrestling and a mantra of never giving up. He met John Cena, wrote to the WWE, and touched everyone he came across before earning his wings at 22.
Edward William Harris
Elliana Rose Campbell
Born into a Navy family in Norfolk, Elliana filled her parents' world with light from her very first day. Her severe JEB meant their time together would be short, but in ten months she showed more strength than most do in a lifetime.
Frank Evert Borg Landin
Frank was a deeply longed-for first child who became known across Sweden as Zuperfrank. In his four short months, his story moved a nation and changed the lives of everyone around him.
A brown-haired baby who became a fierce little redhead nicknamed Goose, Grace had a spirit her family describes as spunky and slightly rebellious. Over 13 months, she taught even her doctors to rethink what was possible.
Grace Randee Erin Moreland
Hayley Winder
Hayley is 24, lives with RDEB, and is raising her four-year-old son on her own in Pennsylvania. She's adapted to every challenge EB has thrown at her and found a community of friends who understand.
Hodges Caldwell Jr
Hodges has lived with EB since childhood and became part of medical history, including one of the first successful full-face skin grafts. Today he leads EBLifeStyle Inc., paying forward the support that shaped his life.
Jonah Williams
After losing a son to stillbirth, Jonah's mother spent her whole pregnancy praying for a healthy child. Jonah was born with junctional EB so rare it's one in two million, and at 16 he's smart, funny, and resilient.
Kendall & Jackson Teague
Born in 1996, Kendall was the first in his Georgia family to have EB, diagnosed after a 63-day hospital stay. Years later his son Jackson was born with it too, and the family's prayer for a cure has only grown.
Lilah Miller
Lilah is a ten-year-old full of spunk who loves Roblox, digital art, and strawberries. She's been through more than most do in a lifetime, and she keeps bouncing back stronger than ever.
Sophia Grace Ramsey
Sophia was her family's greatest blessing, curious and silly and brave through every hardship. After a little over a year of fighting EB, she's now playing without pain, and her family won't stop fighting for a cure.
Theresa Jones
Theresa is 69 and spent 35 years not knowing what she had, believing she was the only person in the world living this way. Her story is one of being ostracized, finding answers, and choosing gratitude anyway.
Wesley Tyler Stone
Wesley was a fighter and the best big brother, a boy who loved elephants, Superman, and making everyone laugh. Fifteen years after losing him, his family still feels his strength every single day.