His full name is Edward William Harris, his nickname is Goobie since his little brother couldn't say Edward. He liked the idea of nicknames and gave himself many, some to keep himself uplifted and some reflected those he loved outside our family as or things that reflected his life's story as an EB Affected person: Edward William Harris, Mr Amazing Fire Eddie, Rage, Nicholas, Josh IV, Fire Fist Ace . February 3, 1995 is his birthday, his favorite color is green, his favorite wrestler is John Cena who he got to meet through Make-A-Wish, and wrestling is the chosen career path he wanted to take, with his in ring personas favorite saying and finishing move titled "feel the heat", and his personal real life mantra "Never give up." He gained his wings April 18, 2017, and is 22 forever. It was hard to share him, but I know he had to go be an angel for someone else.

His name (Mr Amazing Fire Eddie) fit him very well, and his light touched everyone he came into contact with and more than anything, the pain of losing him, the horror that EB is, I was so hurt and angry that people are missing out on such a beautiful human and how excited he was to show them who he was preparing his whole life to be after graduating from high school and his work study program. He actually wrote the WWE and sent them his resume and asked about available positions, who wasn't performing their jobs correctly and when could he start. He also was already volunteering in any capacity he could serving the marginalized and sending care packages to other children in children's hospital, and working steadily to advocate for awareness about EB and, because of its super rarity, EBSMD, esp to the schools, medical and caregiving communities, and giving his time to contribute to research studies with the doctors and students associated with his EB care team and his MD care team. This broke me that people are deprived of all of who he is and would have been, his kindness, sweetness and positivity and hope for the world, and his ability to listen, read and understand people and touch every life he's ever had the chance to meet. When I say he and his brother have been the best parts of my life even though EB sucks, I really mean that. Not because he is my kid, he really was for everyone, and he deserves to still be here. The day I lost him and his voice I not only lost my best friend and twin, his brother lost his best friend and his emerging voice and he's wanted to leave the earth ever since to be with him. So it's really been devastating losing the joy and rock of our family even though we never made him feel that way. He was just a flower blooming and bursting with life. I miss him beyond words and emotions every second of the day.