Sophia Grace Ramsey was born in April of 2019 and was her family's greatest blessing. Sophia was curious, silly, sweet, beautiful and so very brave. She faced so many hardships with a smile, and she gave her family endless joy. After a little over a year of fighting EB, Sophia went to Heaven where she can finally play without pain and where she can have an eternity of happiness. She is so missed and so loved. We know Sophia's greatest hope is to find a cure for her friends, and her family won't stop fighting until we find one.